Monday, September 9, 2013

JDRF Walk to Cure Diabetes 2013 Letter

Dear friends and family –

I started this year’s JDRF Walk letter writing of all the happy things about Grace, ending with a little note of how diabetes affects her life. I used the same type of upbeat tone last year. Then, I considered the reality of living with diabetes…there isn’t much that is “upbeat.”

Grace’s life with diabetes is NOT different this year. Her body still doesn’t produce insulin, which means wearing a pump, checking her blood sugar at least five times a day and making sure to count carbs for everything she eats. We still check Grace’s blood sugar in the middle of the night, sometimes waking her up to eat something for a low reading. Grace still has to go home from having fun sometimes, due to issues with diabetes care. We still get scared when Grace gets sick, because  a simple illness like the flu could mean a hospital visit. Not so upbeat.

The major difference for Grace this year is starting a new school. She has to explain all over again about that “thing” on her arm or leg, which is the pod with her insulin. Then there are the questions about finger pricks during the school day and the trips to the nurse’s office. Being different in middle school for any reason…not upbeat at all.

While Grace’s life with T1D may not have changed much in the past year, JDRF has helped make great strides in making life better for her and all those with Type 1 diabetes (now referred to as T1D). And, until there is a cure, research discovers ways to improve the lives of people with T1D.  JDRF is the leading global organization funding that research (over 100 million dollars last year), and 85% of the funds raised goes directly to research. Included in this letter is a research snapshot from this past year about what JDRF has helped make happen.

 Please consider making a donation to JDRF during the Walk to Cure Diabetes, an event that offers an “upbeat” day for people with T1D. And, if you live locally, consider joining us during a fun day to walk on September 28th at Bicentennial Mall in downtown Nashville.

You can donate or register to participate with Grace’s Team online at http://www2.jdrf.org/site/TR/Walk-TN/Chapter-MiddleTennessee4622?team_id=129906&pg=team&fr_id=2358. Or, you can mail a check to the JDRF of Middle Tennessee office at 105 Westpark Drive, Suite 415, Brentwood, Tennessee 37027, with Grace Kueker written in the memo line.

 As always, thanks so much for your support.

Best –

Monique, Mike, Grace and Claire Kueker

Friday, September 14, 2012

JDRF Walk to Cure Diabetes Dates

Nashville - September 29th
 
Kansas City - October 13th
 
Houston - October 27th
 
The Woodland - November 10th
 
Join Super G's Team by walking for us or with us! We would love to have you wherever you are!!
Look for the JDRF Chapter nearest you....

Saturday, September 8, 2012

2012 Walk Video

video

Uploaded for folks who can't access YouTube from their devices. :)

Friday, September 7, 2012

2012 Video

Please take three minutes to watch the video we made for Grace this year. ;)



Dear friends  -
 
In August 2002, our lives became overwhelmingly different from what we ever imagined. Two-year old Grace got the flu, and she never got “better”; she developed Type 1 diabetes.  Now, Grace is eleven and doesn’t really remember what life was like before diabetes. So, we are asking you to help make Grace’s life overwhelmingly different from what she’s ever known by helping JDRF to find a cure for T1D.Every year, we participate in the JDRF Walk for the Cure and ask for your support. This year, we would like to ask you to donate not only thinking of her, but of our whole family…all of our lives will be joyfully different when there is a cure. We are so excited about the prospect….

When there is a cure for Type I diabetes, we will celebrate!

We will celebrate not writing a letter asking for donations every year! Maybe we will send timely Christmas cards? J

We will celebrate more sleep! No more blood sugar checks at midnight and 2 a.m.! (And at least 5 other times a day.)

We will celebrate not worrying about diabetes complications later in Grace’s life! This disease will not take her eyes, her heart or her life.

We will celebrate the extra shelf in our fridge and extra cabinet space! No more diabetes supplies to store.

We will celebrate the one step less in preparing for school each year! No letters for teachers. No emergency supply kit. No doctor orders or IEP meetings. No careful planning for all field trips.

We will celebrate freedom from diabetes issues at sleepovers! No worrying about what Grace is eating. No middle of the night calls to go change a pump site.

We will celebrate no more scars! Grace’s fingers, tummy and bottom will be free to heal.

We will celebrate Grace being able to follow her dreams and go to whatever kind of camp interests her without fears of adequate diabetes care! Marine biology anyone?

We will celebrate hiring a babysitter without having special training first! And celebrate not wanting to have a sitter for as long as Grace lives with us!

We will celebrate not counting carbs for every thing Grace eats! No wondering if we guessed right for that piece of sushi.

We will celebrate no extra worries when Grace is sick! The flu will be the flu, not laden with the threat of going to the hospital.

We will celebrate no longer having a glucagon pen and worrying that we will have to use it! That emergency will never happen.

We will celebrate Grace never feeling self-conscious with her peers about having diabetes! Things that make Grace different will not include a chronic disease.

We will celebrate life without constant fear! No worry about whether Grace will wake up in the morning.

Our biggest reason to celebrate will be having the biggest worry in our lives gone forever. (Yes, we know there will always be something else, but no more diabetes!!)

When there is a cure, we will celebrate. We will have a party and invite all of you.

JDRF is the leader in funding the search for a cure. By donating to JDRF, you are helping make an overwhelming difference in Grace’s life and ours. If you have donated year after year, thank you. If you have received our letter year after year and have had reservations about donating for whatever reason, we ask you to please consider again this year.  If this is your first year receiving our letter, thank you for being dear enough for us to ask. Any donation to JDRF is not only finding a cure, it is supporting our family – it is looking forward to that joyfully overwhelming difference with us.

Thank you for your consideration. Thank you for your thoughts and prayers. We look forward to a grand celebration.

With hope - Monique, Mike, Grace and Claire

Friday, August 17, 2012

Getting ready for the 2012 JDRF Walk

Hi friends.


I am working on our "real" JDRFWalk letter for this year. In the meantime, I realize the time for the Walk in Nashville is fast approaching.

We are displaced Middle TN walkers this year. We are choosing to walk virtually in Nashville, because that is still where we have our Type 1 support folks (who we miss terribly!). So, obviously we won't be in Nashville to walk with friends there, but that doesn't mean you can't walk for us! Please consider doing so...think of us and our many walks there, send pictures to make us smile. 

Also, feel free to donate before reading our "real" letter. They still take money for us, even if we haven't officially asked. ;)

Look for more to follow soon. Thanks.

Followers